The Weight of Invisible Illnesses

Some days, I feel like I’m carrying a backpack full of shifting weights – feathers one moment, bricks the next. That’s what my symptoms feel like. And most of the time, no one sees it.

I live with a constellation of invisible illnesses: Type 1 Diabetes, Hashimoto’s, Anxiety, Depression, Chronic Back Pain, and Gut Issues. Each one has its own rhythm, its own language, its own way of tugging at the edges of my day. From the outside, I might look “fine.” I might even laugh, show up, smile. But beneath that surface is a quiet storm calculations, discomfort, and emotional labor.

A typical day starts with decisions – tiny ones that most people wouldn’t think twice about. What I eat affects my blood sugar. How I move does, too. How I feel, how I sleep, and even how the weather shifts can make a difference. Type 1 Diabetes isn’t just about carbs and insulin. It’s about managing a thousand variables. These include emotions, hormones, and time zones. And yes, even the wind, if it feels like being dramatic.

Hashimoto’s brings a bone-deep tiredness that sleep doesn’t fix. It’s not just fatigue – it’s a kind of sleepiness that wraps around my body like fog. Anxiety keeps me on edge, knowing that the smallest trigger could send me spiraling into a panic attack.

Depression wears a mask: I smile, I engage, but inside there’s a heaviness that never quite lifts.

My lower back pain is a constant negotiation – how long I sit, where I sit, how far I walk. And my gut? It’s the first to react to everything. Blood sugar swings, emotional shifts, anxiety, cravings, even joy – it all lands in my stomach.

There are days when I do everything “right,” and my blood sugar still rebels. Days when I’m so exhausted I feel like I could sleep for a week. Days when my body image crumbles under the weight of hair loss, weight gain, and hormonal shifts. Days when anxiety floods my system, and I feel like I’m smothering in my own skin. Days when depression whispers, “Why bother?” and I crawl back into bed.

But there are also moments that build me. The quiet resilience of showing up. The sacred pause of listening to my body. The unexpected kindness of someone who doesn’t try to fix me, but simply sits beside me in the fog. These moments remind me that healing isn’t linear – it’s a spiral, a dance, a ceremony.

Invisible illness needs new metaphors. So I’ve invented a few:

These metaphors give shape to the shapeless. They help me speak the language of my body.

Pretending I’m okay when I’m not is its own kind of exhaustion. Masking my symptoms to protect others – so I don’t “ruin” their day – drains me emotionally, mentally, spiritually. It’s a quiet grief, a dissonance between how I feel and how I’m perceived. And it takes a toll.

If you want to help but don’t know how, here’s what I’d say:

  • “I don’t need you to fix me – I need you to witness me.”
  • “My body speaks a language most people don’t hear. If you’re willing to learn it with me, that’s already a gift.”
  • “Support doesn’t always look like an action. Sometimes it’s just sitting beside me in the fog.”
  • “My energy is like moonlight – beautiful, but not always bright. I pace myself so I don’t burn out chasing the sun.”
  • “You don’t have to understand everything. Just believing me – without needing proof – is a kind of medicine.

If you’re navigating invisible illness – or want to support someone who is – here are a few resources that offered me insight and solace:

2 responses to “The Weight of Invisible Illnesses”

  1. Amber Dukes Avatar
    Amber Dukes

    i can relate to so much of this as someone who heavily struggles with anxiety, depression, ibs which causes tons of gut issues and now perimenopause which is a total roller coaster

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    1. Empath Vortex Avatar

      Yes, all of those things going on in the body impact so many things in our every day life, and unless someone is experiencing those things, they have no clue how it does impact us – and even then it’s difficult because everyone experiences these things and more so differently.

      Like

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I’m Brandy

Welcome to my little corner of the internet, where I share pieces of my healing journey and growth as an empath and highly sensitive person. With nearly 30 years of life—packed with more experiences than many have in twice that time—this space is where I reflect, process, and share what’s helped me navigate it all. I’m glad you’re here—let’s grow together.

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